Lived Experience Advisory Panel

Lived Experience Advisory Panel

Alongside The McPin Foundation, we are working to ensure lived experience voices are heard across the Hub through Workstream 6: Patient and Public Involvement and Engagement (PPIE), and Dissemination. Part of this workstream has involved establishing a Lived Experience Advisory Panel (LEAP) comprising 12 members with lived experience of SMI and reduced metabolic health.

We are looking for 5 more people with relevant lived experience to join us.

    • Over the age of 16

    • Based in the UK

    • Direct lived experience of SMI (schizophrenia / psychosis, bipolar and/or depression)

    • With related reduced metabolic health e.g., weight gain, diabetes, reduced heart health

    • Interest in the connection between mental and metabolic health

    • Access to a computer, tablet, or phone, with camera and stable internet connection to be able to join online meetings with video

  • The Hub LEAP meets online for 1.5 hours every other month for the 5 year duration of the study to input into Hub activities across all 6 of the workstreams, including:

    • Regular communication and priority setting with workstream leads and relevant stakeholders.

    • Working with a PhD student to co-produce a Metabolic andMental Health Accelerator (MMHA) online platform. The MMHA will combine continuous glucose monitoring (CGM), weight, BMI and self-reported symptoms to allow individuals with SMI to gain insight into trajectories of their own metabolic markers and potential relationships with mental health symptoms.

    • Co-production of a Lived Experience Impact Score (LEIS), a scoring system to rate the quality of lived experience involvement throughout the activities of each workstream.

    • Dissemination and public engagement, ensuring outputs are understandable and accessible.

    • Opportunities for lived experience leadership feeding into the Hub management group and wider UKRI MHP.

  • Please complete the expression of interest form here.

    Please don’t hesitate to get in touch with the Hub PPIE co-lead, Annie Walsh, annabelwalsh@mcpin.org if you have any questions, need any assistance completing the expression of interest form, or would like to discuss alternative ways to apply.